Like most of the working well population, when this horrid Coronavirus thing initially started to break the thought of two weeks of self-isolation sounded great. No juggling meetings, no school runs and I might actually get to read the book I bought back in 2005… However, it has progressed at an alarming rate. Whilst, outwardly, I … Continue reading The Coronavirus and me (well, Harry)
When we launched Harry’s Hydrocephalus Awareness Trust – or ‘Harry’s Charity’ as Lewis, Harry’s seven-year-old ‘little, big brother’ calls it – it was all about finding a cure. We didn’t (and still don’t) want Harry to live with this condition forever and surely, we thought, there must be a better way. Fast forward a year … Continue reading But he’s MY brother
My friend recently sent me a brilliantly constructed article from the BMJ, written by Stephanie the ‘Mum’ of a little girl with a life-limiting illness. The article is called ‘Don’t call me Mum‘. The content really resonated and although unlike Stephanie’s daughter Daisy, Harry is considered life-threatened rather than life-limited. I read this and immediately … Continue reading Don’t call us Mum (or Dad)?
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